问题: 医学与健康

情报机构推动公益性质医学研究

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将值得信赖的情报机构作为值得信赖的合作伙伴,根据私人健康史和基因数据进行健康研究。

YAML 想法

医学研究有一个难题————基因和详细数据不可避免地具有个人身份,所以,很难将之共享与计算(同态加密可能会解决这个问题,但我现在还不知道具体如何解决)。

但是,社会可以从个人病史和基因数据中获益。

所以,若对健康保险或其他客户那里获利并不感兴趣,情报机构作为相当中立的一方,实际上可以是合法地被允许使用这种私人和个人数据进行研究的。

另外,公司非法获取此类数据的例子是存在的,例如,链接

Mindey,


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当然,会有评论说,人们应该在使用OAuth的情况下必须同意他们的数据,或者在获得许可的情况下使用加密技术和tokenomic分散式计算。我当然知道这些方法,如果医院以这些标准方式管理其数据,那就太好了。但是,人们确实同意人们通过授予政府权利来换取社会价值,因为这样做要比逐案征求同意更有效。

这个想法提出的是,这样的医学研究就是这样的情况之一,因为衰老和死亡是我们所有人的共同敌人-我们可以通过默认情况下系统和大规模地合作来迅速发现最佳治疗策略的模式。也许应该估计这种风险,因为为获得治疗的疾病而额外损失一些隐私会增加成本,从而使人们的寿命更长寿。

Of course, there will be comments saying, that people should have to consent to their data, using OAuth, or cryptography and tokenomic decentralized computing with permissioning. I'm of course aware of these methods, and it would be great if hospitals managed their data in those standard ways. However, there are certain consents that people do through giving rights to governments in exchange for social value, because it's more efficient than asking for consents on a case-by-case basis.

What this idea is proposing, is that such medical research is one of such cases, because aging and death is the common enemy of us all -- we could quickly discover patterns of and best treatment strategies by systematically and massively cooperating for this by default. The risk perhaps should be estimated as the cost of extra loss of some privacy to the gain in treated diseases and life years of people survived longer as a result.